A long overdue update!
The past 2 weeks have quite busy for myself at work. Last week I was out in Portland for work. Then this week I had to work Monday – Wednesday until after 10pm due to meetings. I am glad it is over now, time to get back in the normal routine! The past 2 weeks have also been long for Jill, as she has had to be home with the boys every day and practically every hour. I tell you what though, despite how crazy this place can be with the 4 boys, and Liam’s tantrums, I really miss them all when I am away. I find myself constantly wondering how Liam is doing, does he need to be held, is he doing ok in school, was anyone mean to him. The thoughts go on and on when I call home those thoughts are put to ease as I ask Jill all about Liam’s day.
Last week Liam was much the same as he has been. Still having the fits, an occasional meltdown, and the repeated pajama changing. The pajama thing seems to have stopped, for now. While I was in Portland Liam kept asking Jill if I was Oregon. He would often repeatedly ask everyday if I was in Oregon. Liam took my picture on his activity chart on the utility room door and put my picture on the airplane, meaning I was out of town. Jill showed Liam the state of Oregon from a puzzle of the United States. She showed him with a toy airplane how the plane flew to Oregon. On the Oregon piece of the puzzle was a fish, so Liam thought I was fishing. When I got home from Portland Liam tried explaining this all to me and I could only put bits and pieces of it together. Jill filled in the blanks for me.
This past week I had to work late Monday – Wednesday. I would get home after the boys went to bed, so I never to got see them. Wednesday it was my birthday so I made an extra effort to get home to see the boys. Jill said they wanted to make a cake and sing happy birthday to me. That day, Liam repeatedly asked when I was coming home so he could sing to me. When she told me that over a phone call I really wanted to get home earlier than I planned. As it turned out I was able to get home by 7:30. The boys had no idea I had come in the house. Seamus came down the stairs just after I walked in and I surprised him. As soon as he shouted Daddy! Liam, Aidan, and Brendan, came running down stairs. They all just wanted to sing happy birthday to me. They sang and we all had a piece of cake before heading up to bed. It was really special. Liam sat in my lap while he fell asleep. I couldn’t sit down fast enough for him.
This weekend Jill and I have noticed Liam being more rigid in the way he holds his hands. To help give you an idea of what we are talking about, picture a child standing idle, their arms and hands will hang at their sides or they will fold them, or put them in their pockets. Liam’s hands have been up around his face or at his hips, each finger is bent in a different position. This is how he has been holding his hands a few times a day. The other thing we have both noticed is his stammering has been terrible. The stammering has gone on throughout the day. Saturday night while he was taking a bath his stammering was so bad I had to talk to him slowly and softly to get him to slow down and talk. Sunday the stammering continued. We aren’t sure what is causing this now, but it is something we have noted. We will bring this up to his teachers in school and his neurologist.
So the challenge goes on. We can only continue to keep up the fight and continue to work with Liam to help him progress. Right now we are in one of those phases where if there is any progress, we aren’t seeing it. It’s rough, but we will be ok.
Last week Liam was much the same as he has been. Still having the fits, an occasional meltdown, and the repeated pajama changing. The pajama thing seems to have stopped, for now. While I was in Portland Liam kept asking Jill if I was Oregon. He would often repeatedly ask everyday if I was in Oregon. Liam took my picture on his activity chart on the utility room door and put my picture on the airplane, meaning I was out of town. Jill showed Liam the state of Oregon from a puzzle of the United States. She showed him with a toy airplane how the plane flew to Oregon. On the Oregon piece of the puzzle was a fish, so Liam thought I was fishing. When I got home from Portland Liam tried explaining this all to me and I could only put bits and pieces of it together. Jill filled in the blanks for me.
This past week I had to work late Monday – Wednesday. I would get home after the boys went to bed, so I never to got see them. Wednesday it was my birthday so I made an extra effort to get home to see the boys. Jill said they wanted to make a cake and sing happy birthday to me. That day, Liam repeatedly asked when I was coming home so he could sing to me. When she told me that over a phone call I really wanted to get home earlier than I planned. As it turned out I was able to get home by 7:30. The boys had no idea I had come in the house. Seamus came down the stairs just after I walked in and I surprised him. As soon as he shouted Daddy! Liam, Aidan, and Brendan, came running down stairs. They all just wanted to sing happy birthday to me. They sang and we all had a piece of cake before heading up to bed. It was really special. Liam sat in my lap while he fell asleep. I couldn’t sit down fast enough for him.
This weekend Jill and I have noticed Liam being more rigid in the way he holds his hands. To help give you an idea of what we are talking about, picture a child standing idle, their arms and hands will hang at their sides or they will fold them, or put them in their pockets. Liam’s hands have been up around his face or at his hips, each finger is bent in a different position. This is how he has been holding his hands a few times a day. The other thing we have both noticed is his stammering has been terrible. The stammering has gone on throughout the day. Saturday night while he was taking a bath his stammering was so bad I had to talk to him slowly and softly to get him to slow down and talk. Sunday the stammering continued. We aren’t sure what is causing this now, but it is something we have noted. We will bring this up to his teachers in school and his neurologist.
So the challenge goes on. We can only continue to keep up the fight and continue to work with Liam to help him progress. Right now we are in one of those phases where if there is any progress, we aren’t seeing it. It’s rough, but we will be ok.
posted by Jim McIlwee at
8:58 PM
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