Daily challenges with Autism, and life with the McIlwee's

Wednesday, August 24, 2005

A needed “good” day

Today was a surprisingly much better day for Liam. He still had his fits, but not as bad as in the past few days. While all the fits are still going on, we continue to see Liam picking at his teeth. We have paid special attention to watch this. He has already done enough damage to his gums that we really worry what may happen with his teeth as he gets older.

Jill and I had to go over her parents to finish cleaning up after their family room flooded from the rains we had this past Saturday. We were going to take all the boys, but a good friend and neighbor said she would watch the boys for us. We were quite hesitant at first knowing the fits and tantrums Liam has had, plus how he will just take off down the street to go play with someone else without asking. Adding in Aidan and Brendan to the mix just made for what sounded like a difficult time for someone with 5 of her own kids. We left and expected all kinds of tears and surprisingly there weren’t! When we got back the boys were all playing inside our neighbor’s house quietly and happily. It seemed unreal. The boys all said hi to us and kept on playing. We asked Lynette how they were and she said they were excellent. She told us what they did and how well behaved they were. We were both so glad to hear that, but yet wonder, why in the world can’t they behave like that for us! Oh well, it was nice to hear. At bath time the boys were even cooperative and in good spirits. Quite different from how they are usually over tired and crying. Liam was an actual pleasure to bathe and get ready for bed. If only every night could be like this!

Jill and I wrote an email to the person from the Cuyahoga Country Board of Mental Retardation/DD who notified Lifeworks of the change to what they are paying for Liam’s Adaptive Aquatics class. Jill and I broke down the costs and number of sessions Liam will have. In the end, we would owe $27 on December 22 rather than the $250 Lifeworks notified us of. We are both aggravated that the County has not notified us why the change. We are now waiting for their response. It would really be a shame that Liam can not continue to attend Lifeworks, he has really done so well. Stay tuned for updates.

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