Getting back to business
This past week has been busy. I had to work every day last week until midnight. I was coming home for a few hours sleep each night and going right back to work. I only saw the boys a few minutes in the morning before leaving for work.
Talking with Jill throughout the week Liam was his typical self of late. He continues to have his moments of anxiety repeatedly throughout the day. It still continues to be quite difficult to deal with every day. Liam’s speech continues to be a problem. I have come up with something to help Liam slow down his speech. I took his hand and had him tap his leg and say one word at a time. It became rhythmic to him and it actually seemed to help. I have even caught him tapping his hand on his own when he realizes his words aren’t coming out right. I still remind him and try to help him slow down. It is not perfect, but it is helping. It seems to be helping more than the speech therapy he is getting at school.
Liam continues to have us read the TV the guide and tell him what is on his favorite channels each day. We will do this a few times each day. It seems to help him organize his day. Liam is also still in the routine of wanting to take a bath right after he is done with dinner. It is usually when we are still eating dinner. His anxiety then gets the best of him and he will whine and cry that he wants to take a bath. As soon as I finish dinner I take him up for his bath where he relaxes and gets ready for bed.
We have also started his new dosage of risperdal. He is on a 2mg pill now. He gets ½ a pill in the morning, and ¾ at night. We have had to use our pill splitter. That has become quite a challenge splitting the pills each day. It has been about a week and I can’t exactly say I have seen any or much of a change. We’ll see as we go on here. The other issue we think Liam is having with the risperdal is frequent urination. We at first thought it was a potty training issue, but after reading the side affects we believe it to be a result of the medication. Jill is contacting his neurologist Tuesday to talk about it.
This past Friday we attended a benefit dinner for one of Liam’s old classmates. As expected, the crowd and noise was too much for Liam and he and I went home early. The girl’s name is Dakota and she lives in our development. She was diagnosed with Tay-Sachs disease. This disease has no cure, only an experimental treatment that is highly expensive. The Olmsted Fall’s Women’s Club put on a fund-raiser to help pay some of the costs. The community response was incredible. It was really touching to see a community come together for Dakota like it did. We wish Dakota all the best in her treatments.
Talking with Jill throughout the week Liam was his typical self of late. He continues to have his moments of anxiety repeatedly throughout the day. It still continues to be quite difficult to deal with every day. Liam’s speech continues to be a problem. I have come up with something to help Liam slow down his speech. I took his hand and had him tap his leg and say one word at a time. It became rhythmic to him and it actually seemed to help. I have even caught him tapping his hand on his own when he realizes his words aren’t coming out right. I still remind him and try to help him slow down. It is not perfect, but it is helping. It seems to be helping more than the speech therapy he is getting at school.
Liam continues to have us read the TV the guide and tell him what is on his favorite channels each day. We will do this a few times each day. It seems to help him organize his day. Liam is also still in the routine of wanting to take a bath right after he is done with dinner. It is usually when we are still eating dinner. His anxiety then gets the best of him and he will whine and cry that he wants to take a bath. As soon as I finish dinner I take him up for his bath where he relaxes and gets ready for bed.
We have also started his new dosage of risperdal. He is on a 2mg pill now. He gets ½ a pill in the morning, and ¾ at night. We have had to use our pill splitter. That has become quite a challenge splitting the pills each day. It has been about a week and I can’t exactly say I have seen any or much of a change. We’ll see as we go on here. The other issue we think Liam is having with the risperdal is frequent urination. We at first thought it was a potty training issue, but after reading the side affects we believe it to be a result of the medication. Jill is contacting his neurologist Tuesday to talk about it.
This past Friday we attended a benefit dinner for one of Liam’s old classmates. As expected, the crowd and noise was too much for Liam and he and I went home early. The girl’s name is Dakota and she lives in our development. She was diagnosed with Tay-Sachs disease. This disease has no cure, only an experimental treatment that is highly expensive. The Olmsted Fall’s Women’s Club put on a fund-raiser to help pay some of the costs. The community response was incredible. It was really touching to see a community come together for Dakota like it did. We wish Dakota all the best in her treatments.
posted by Jim McIlwee at
9:52 PM
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